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Press conference of the National alliance of people with rare diseases |
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 On Tuesday 23.11.2009 a press conference of the National alliance of people with rare diseases will be held. The topic of the press conference will be 'People with rare diseases left without medicines again.'. At the press conference facts will be presented according to which the medicines of many patients with rare diseases have not been included in the specification of the ministry of health and will not be negotiated for 2010. As we already announced The National alliance of people with rare diseases sent a letter to prime minister Boyko Borisov but there is no reply so far on the matters raised in the letter.
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News 
петък, 03 септември 2010
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